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部落格全站分類:生活綜合

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  • 3月 31 週三 200420:35
  • 欣喜若狂


來稿】 新華社電德國馬普學會的研究人員近日發現,神經系統中缺乏一種蛋白質,是導致多發性硬化症的關鍵原因,這為開發治療多發性硬化症療法提供了重要線索。多發性硬化症是一種中樞神經系統疾病,全世界患者約有100萬人,迄今這一疾病還無法治愈。此前研究認為,該病是由於機體免疫系統錯誤地攻擊了神經系統所致。
這項研究發表在最新一期的《科學》雜志上。研究人員指出,這一發現尚處在基礎階段,還需要進行更深層次的研究。
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  • 個人分類:le Monde de la SEP
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  • 3月 29 週一 200420:46
  • amusement park


I found that NCKU hospital likes an "amusement park" which supports "lodging turn". Why not? I think there are less people except us have so much chances to take MRI, Evoked Potentials, etc....
As a MS patient, I take it as a great honor. Because we live in frontier of neurology. Except the ordinary life, we also have the chance to relize the "maimed journey". Sure! The words above is just a consolation.
Today I met my neurologist, he was glad for my well recovered, and encourged me with a sunny smile because the Rebif application is in controversial. The neurologist told me that my statut gets grades between 4-5.5. I smiled, because I can avoid injection untill the application being accepted...~"~
I hope to get well soon surely, for my famliy is very poor and tired as I taking the "vacation"......I hope, really, if I have the chance to break away from the disease. But it seems that we have no ability to change the physical illness, the only way is to keep in a healthy mind. Sadness brings maimed life more quickly. Isn't it? Take care. (188 words)
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  • 個人分類:le Monde de la SEP
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  • 3月 23 週二 200421:15
  • 殘障手冊


今天"終於"拿到殘障手冊了
所謂殘障"手冊"也不過爾爾
只是一張長得很像駕照的證明
縣政府還很沒誠意的把我名字和住址打錯了
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  • 個人分類:MS體驗営
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  • 3月 22 週一 200421:08
  • after the election...


After the election, everything seems to be more complecated. People who support KMT continue the protest in front of Presidential Office and TV news keep nervous all day long. The stock market condiction was crumbling. What time can they stop the protest? I've been very tired of it.
And, I heard two amazing things recently.
The first one is a gossip about someone has sexual intercourse with her bf continually without using "french letter". However, her boyfriend is so damn shit to talk this secret to everybody!
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  • 個人分類:無法分類
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  • 3月 21 週日 200419:32
  • 紛亂的一天


今天只要一開電視就可以聽到滿滿的汽笛聲
聽得實在是.....很煩...頭也很痛...
這樣的結果是令人始料未及的
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  • 個人分類:無法分類
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  • 3月 20 週六 200423:42
  • Leaving off halfway is my wrost demerit


"Taiwan president wins narrow re-election", the Yahoo online news headlines. This is my first time to vote and I also joined the plebiscite because I love Taiwan indeed. In counting votes was so exciting, but the result was unexpected for me. But I rescept the result.
However, the first thing I worry is not who wins the election but my future. I know my life goal is to keep in healthy but I really don't know what I can do to keep body and soul together.
Now I do nothing at home everyday except taking rehabitlitaion. I like to read, but I can't read a book fully.
Leaving off halfway is my wrost demerit. I should arrange somehow to improve it.(121 words)
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  • 個人分類:無法分類
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  • 3月 19 週五 200420:39
  • My sincere prayer


I've got Mutiple Sclerosis for more than half a year. My right eye had gone blind during last July. I am still very scared of losing my vision now. Not untill my body was paralyzed, I tried to take it a hallowed juorney. It's a very different chance that God gave me to learn some experiences. I started to take care of people who with disease, and encouraged to each other. Several days ago, I joined the MSIF, and I can realize how the people who with ms live around the world. I think I am very lucky. However, don't make me go helpless and being paralyzed please!! (108 words)
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  • 個人分類:無法分類
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  • 3月 18 週四 200411:19
  • Rebif


Do you take the treatment Rebif?
The application of medicaid will be accepted soon, and I can use Rebif free of charge as the application being passed. It sounds great. However I'm very scared of the painful injection but it seems likes we have no choice about injections to try to avoid MS.
If yes, could you tell me how you are feeling in using Rebif?
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  • 個人分類:le Monde de la SEP
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  • 3月 17 週三 200413:52
  • I've got maiil!


Today I got the publication of Taiwan MS Association. There are many stories of people with ms in Taiwan. I found the worst condition in it : stone - blind, quadriplegia.....how scare of it!! I can likely imagine the scene that I sit on the wheelchair.
oh! Jeuse!! I am a damn activist! I won't stand on it mustly I think!!
As reminding the year before last, I joined the GYSD (Global Youth Service Day ) and played crazy. I remember the summer vacation in 2002 was very exciting that we had a lunch with the congressman of Canada whos name I've forgoten and received the 20-year-old mayor Portman.
I also enjoyed group dancing at that time. When hearing the familiar music, my body couldn't stand on it but start dancing.
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  • 個人分類:MS體驗営
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  • 3月 16 週二 200421:56
  • damn election


I think there will be many people can't understand my diary coz my poor English. I am very glad and thanks that there is someone makes correction of the articles. For killing time and practicing English, I started to make diary in English from 3 days ago. Life during the medical vacation is very boring because my hands and legs always feel numb that I can't do everything well except typing.
As time approaches the presidential date, it's full of noise everywhere in Taiwan. I am very tired of it.(90 words)
--
16.03.2004
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  • 個人分類:MS體驗営
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